Input for citizen interview meetings

November 2, 2015

Click the following link to go to the HBP collaboration portal, and provide input on the forum: ###############################

In February 2016, the first citizen meetings of the Human Brain Project will be held. The HBP SP12 will host 6 meetings across Europe in Austria, Bulgaria, Poland, Portugal, The Netherlands and Sweden. The aim of the meetings is to understand how citizens in different EU countries think about privacy and data protection in research projects.

For this purpose we are developing a short introduction to data protection measures and anonymization techniques.  We are also developing a questionnaire for the citizens to answer during the meetings. For this purpose we would like to ask our HBP partners to contribute with questions or concerns that they would like to know more about how citizens think off. Therefore, please post your questions and concerns in the box below, or respond to ours.

The Danish Board of Technology Foundation (DBT) leads the HBP SP12 engagement activities with stakeholders and the general public.

A selection of general questions that have been identified so far:

  • What do citizens in the EU think privacy is?
  • Why is privacy important (or not) to EU citizens?
  • What do EU citizens think anonymization of data is?
  • How do EU citizens think researchers may use their personal information?
  • Who do EU citizens think may access data aggregated from people’s personal data?
  • Where do EU citizens think the balance should be struck between individual harm/benefits and the common good?
  • How do EU citizens think their data should be protected?
  • What do EU citizens think about commercial use of their data?

 

Click the following link to go to the HBP collaboration portal, and provide input on the forum: ###############################

If you do not have access to the HBP collaboration portal you can share your ideas by sending an email to jyb@tekno.dk.
If you want to read more about Citizen Interview Meetings, click here.